For those who have been reading along at Caring Bridge, I will make this a bit brief on the status of Liam’s health. As of right now, the doctors are going towards the direction of neuromuscular disease/syndrome. They will be performing a muscle biopsy soon. Also, they are concerned about his brain activity and that Liam’s brain did not fully develop in utero.
The news, after I read it, hit me like a ton of bricks. I try not to call and pester too much, so after a brief text message yesterday to Stacey and hearing back that they were okay, just really tired, I opted to wait until she posted an update before jumping to the worst possible conclusion. I read it outloud to a coworker before grabbing something to eat. All I could do was try to breath, concentrate on the words and not let my mind race to a million different bad scenarios.
Luckily the coworker I was reading it to was Amy. Her son was born two months early, contracted a staff infection and probably had every piece of bad news delivered to her during the two months B was in the hospital. She explained to me what the doctors said about B, he could be in a vegitative state for the rest of his life, he may never walk, he may never develop mentally, etc.
Bottom line, a parent’s worst nightmare. B is getting ready to celebrate his fifth birthday, he is in mainstream PreK, can walk with the aid of a walker and will begin a new therapy shortly that entails wearing a bungie suit that will help him grow stronger and will be able to walk on his own. He has had Botox therapy for his legs and goes weekly for horse therapy. While his legs are strong enough to walk, the therapists say that now it is a maturity thing.
So, for a little boy whom doctors didn’t think had much hope, he has proven them all wrong. And, can I just say, he is a doll! The big brown eyes kill me!
I keep this information close to my heart because this is what gives me hope for Liam. Sweet, can’t get enough of those cheeks, can’t wait till he is running us all over the place and in particular driving his mommy and daddy crazy, asking to borrow the car, stay out late, etc. I have great hopes for him and I know that God does too.
Please continue to pray for them. Pray that Stacey and Jason continue to feel a peace about the process as well as the strength to keep on going. I know from what little I do, I am exhausted, so I can only imagine how they are feeling right about now.
And little Liam? Happy early Birthday little man! Tomorrow you will be two weeks old. I can’t even remember life without you around but you could have stayed put a few more weeks but I guess you were just as excited to meet your parents as they were to meet you! I will see you soon and am sure I will continue to promise the earth, moon and stars to you! Of course, your mommy is very sensible and reels me in when needed!