The news isn’t the greatest. The micro array test was sent to Baylor University (the only facility that processes this test) and the results showed that Liam is missing a chromosome (16th I believe). Stacey and Jason have had their blood drawn as well and it is at Baylor being tested with results to come back in about two weeks. This is so they will know if it is a genetic issue from their end or if this was just a “fluke” something I had to type right now.
They have been given options of what to do next for Liam and they are leaning towards transferring him to a local hospice. The date has not been determined yet. The upside to this is that more people can visit at once and they will look at removing his vent tube. Liam can breathe and does breathe on his own, it is his airway that is the problem, too small.
I sent pictures to Walgreens to have them printed there since my printer doesn’t print great pictures and as I was picking them up the lady at the counter commented on how beautiful he is. I started to tear up right there because I kind of know how this is going to end. I don’t want him to leave us and facing that is a tough pill to swallow. One that I have and will probably continue to be in denial about.
Stacey called to let me know they were heading to the NICU to spend time with him, so I had a quick bite to eat and then headed over. I got to watch and film Jason changing a poopy diaper as well as their nurse, Linda, get Liam ready so his mama could hold him. As I was taking pictures I started to cry. I kept telling myself to suck it up because I don’t need to crumble when I am with them. I then thought about the fact that my Popa passed away six years ago close to this time. I kept thinking of him and then thinking that maybe Popa can hang out with Liam if Liam leaves us here. Then I was a mess. Poor Jason tried to come over to hug me and I kept backing away (self preservation mode, learned it from when we were dealing with Popa’s decline in health).
I finally got it together so I could sit and watch Stacey hold her beautiful baby boy. Then Linda came in again to get Liam up so Jason could switch spots with Stacey. The neat thing about all of this, they do undo his vent tubing and he is fine, breathing on his own, just his airway that makes things a bit more difficult.
We chatted for a bit longer, me snapping away, stealing moments of a beautiful family of three bonding. Most are on their camera, which I will dump onto mine soon enough. I will do a picture post tomorrow. I just downloaded the trial of Lightroom (love it, wish I could afford it!) and will do a bit of editing.
Please continue to pray for them. The strength they have is amazing. And each day I just fall more and more in love with this little guy.